...but Ethan seems to finally be improving somewhat. He was more chatty today and awake for a good while. It seems after many tests, his brain is fine. WHEW!!! But his neurosurgeon wants to keep our December MRI date to keep a close eye on Ethan's cysts. Although they are stable they are now questioning their make up - which was a total shock to hear. But this information was 2nd hand and maybe it isn't as it sounded. I will reserve comment on this until we've had more follow ups.
Although they were trying to admit him under pneumonia, he clearly does not have a pneumonia. Our respirologist was by and she is running some additional testing since we are in hospital and it could shed light on his lungs and their function or any lack there of. We just had the CT scan this afternoon so do not yet know the results.
So with all other things ruled out, it seems it is a gastro-intestinal bug. It had a very weird presentation and that confused a lot of us (including the doctors). They took a stool sample today, so hopefully we know at some point what the results are. A swab was taken his first day and we are still awaiting the results to find out if it is a virus and which virus it might be. Apparently, they now send the swabs to a larger city nearby and have them run tests. It is much slower in providing responses. I spoke with the doctor who runs the therapy facility he attends and they assure me that none of the other children nor the staff have any signs of a GI bug...and there isn't any in our house, so where did he catch it?
We took Ethan off the monitors because for the CT the probe spots had to be removed and it was the second time they'd been removed, so hopefully he continues to behave himself tonight and continues to improve health wise. His sleep patterns are all out of whack again, and I hope that doesn't take long to change when he is home again.
So many worries, but what a relief that his tests show his brain is fine and not the cause of all this.
ReplyDeleteIsn't that the truth?! It sure is a major relief! :)
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