Over a Week and Counting

We've now been in the critical care unit for over a week.  Ethan's oxygen needs have been going down and he looks great.  He is well rested and in good spirits today.  He still sounds a bit chesty but is doing pretty well.

Yesterday morning he woke up at 4 am and decided to party for a bit.  He had fallen asleep before I arrived at 9 am and had a long nap.  He looked so relaxed...

His oxygen monitor reads 17 and 60...this morning he is at 14 and 45.  :)  We're really going in the right direction.  He was given the green blanket above during his visit here but it was thrown into the wash here and lost.  :(  He also received a really nice e card from his friend Sophie.  Thanks for putting a smile on our faces Sophie!  It is nice to know you're thinking of him.  :)

Unfortunately, this morning he blew his 3rd IV.  I'm not sure if you can tell just how puffy his poor right hand is right now...but it is interesting to note that his fingers don't look quite so long.  His geneticist had said that his fingers look SO long (everyone points it out) because he doesn't have much weight on.  And now with his puffy hand, I can really see that his fingers don't look quite so long anymore.