Thursday, July 18, 2013

Lots of Little Changes

Ethan getting a saline nebulized (wet) treatment a week post-op in the hospital before bedtime.

After just over a month in hospital, Ethan was discharged on June 26th.  His trip home was horrible!  He was in so much pain that he got sick twice, he moaned and cried the whole way home.  Once we got him home and settled in (laying watching TV), he calmed down and was happy again.  When we went for his follow up appointment on July 3rd, he got sick 3 times on the way to the appointment and moaned, flinched and groaned the whole way home.  We moved all his out of house appointments and are trying to let him take it easy while he recovers.

From the follow up appointment we were told that he would likely be in a lot of pain for a month to 6 weeks post-operative.  It was suggested we give him Tylenol and Advil around the clock, but we chose to only medicate him prior to times he would sit in his wheelchair.  That seems to have worked as right now he is tolerating his wheelchair for longer periods (than before) and does not seem to require Tylenol.  I think when he gets tired it is harder on him.  We have tried him in his walker a few times and he will tolerate it for up to 10 minutes but then needs out.  Hopefully as he continues to heal he'll do better with this.  His incision looks great and has healed well.  One of the nurses who cares for him said that when she listens to his chest, she is now listening to his heart in a different spot ("where it should be") and that his lungs sound great.

He does seem to still have some pain and is also currently dealing with a lot of gas pain.  It bothers him through the night and sometimes even awakens him for hours at a time.

While Ethan was in hospital, one of Lorelei's school projects was to build a kite.  It was a project she and Daddy undertook over a weekend.  The end result was the largest kite for her classroom with a wingspan of about 7 feet.  Lorelei chose the style, assisted with the markings for cutting, taping of the kite and generally assisting with the building process.  After it was completed, she decorated it too...

You can see it in action here https://www.youtube.com/watch?v=4Lyrdr3wYg0 Youtube edited the video and that's why it looks like they are about to get zapped by lightning but it was not that bad. 

Shortly after discharge, school ended for Lorelei.  She wanted to dress up nicely for her last day, so she wore the dress she got for Christmas from her Nan & Pop.


The end of school also brought about a sight you will likely only see as the kids (and teachers no doubt) empty out their desks and gear up for a summer away from school.


The return of long lost containers.  The one day she brought back a total of nine containers...it is no wonder there was so much space in my cupboards recently.