He doesn't look great in it yet, but HE WALKED!!! I'm so happy he was able to do that again! He was in therapy when they tried him on a different walker without success so we brought ours in. The first time in that was a bust as well. His third try was more of a success (photos above). We're hoping to get him back into his walker after he's been feeling better for a bit.
The black thing around his neck is to help keep his head/spine aligned and avoids the 'C' shape which could cause troubles with his rods.
Ethan had revision surgery for his rods in April, and they were able to 'grow' him more than anticipated. They had told us surgery needs to be every 4-6 months until he reaches skeletal maturity. During surgery they plan to grow his rods by 1 cm per surgery until we run out of rod space and then he will need to have the rods changed out to allow for more growth. This first expansion seems to have gone well, they got 2 cm growth and we were home within the week.
Besides laying on the floor, sitting in his wheelchair and spending some time in his standing frame, Ethan has been hanging out in an easy chair...
And on the futon...
Sorry the photo looks blurry, it is because I took it at night without sufficient lighting. He was enjoying whatever was playing on TV.
We have been taking Ethan out for walks lately, which he seems to really enjoy. We've also had a couple meetings with his school to prepare for him staring in September. He will be going to the same school as Lorelei. Earlier this month we joined in one of the school activities - a pizza picnic for families and new comers to the school and as per Lorelei's request I brought Ethan. He was pretty happy to sit in his wheelchair and watch all the children and their families. It was really nice to see as I wasn't sure how he would tolerate it. Lorelei was also quite proud and had to introduce Ethan to her teacher and some of her friends.
