The End of Some of our Waiting...

July was a good month for us!  :)  We went the full month without any admissions to hospital (touching wood) and although I'm excited to say that, I also find it kind of sad given we'd spent so much time without an admission before last June.  July has been a busy one for Ethan (and by extension us).  Because of the lost teeth, Ethan was referred to a periodontist and last week we had our follow up appointment.  After consulting with the pathologist who analysed Ethan's first few teeth that fell out, he thinks that the cementum (it is what keeps teeth in) was likely affected by the chemotherapy Ethan had as a baby.  Only time will tell if his adult teeth are similarly affected or if it was just the baby teeth.  He also did not think Ethan was experiencing any significant bone loss and felt that was not a worry.

Meanwhile, Ethan had a bone density scan last week from which we are still awaiting results.  Our orthopedic surgeon is waiting for the results of the scan before proceeding with planning Ethan's next cast.  A couple weeks ago we got to meet Ethan's new physiotherapist in our home and she came by with different equipment for him, as he outgrew some of the equipment.

Tomorrow, he gets his new wheels (and seating) and we find out the results of him brain MRI.  We'll end the week with an adjustment to his back brace.  The orthopedic surgeon has asked me to increase his time in the brace from about 2 hours per day to 8-10 hours per day.  We just started putting him in the brace at bedtime to meet this request.  Ethan has grown a lot since the brace was made, and in the past month or two has gained some weight so the brace no longer closes properly on the bottom.  We're hoping to have a longer strap put on until we know what we're doing regarding casting, etc.