One question we often get relates to Ethan's quality of life. Although things are not easy, I think it sounds a whole lot worse than it is to live (okay, so some times it is really overwhelming I admit...but you get the point I think). The following video was shared with me, and I think Can do (although not human) best illustrates how quality of life is very subjective.
http://www.dogwork.com/kan6/
Hi
ReplyDeleteMy name is Jenna and I came across your site. Your son is an amazing, courageous, strong and determined fighter. He is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and I love it when people sign my guestbook. www.miraclechamp.webs.com