Typical...

...not something we hear very often with Ethan...but this one has a bit of a negative side to it.  He is displaying typical withholding symptoms.  That is what his GI doctor had to say yesterday.  He figures Ethan had a negative experience with stooling and now he tries to withhold, but by withholding it makes the gas worse and the stools more explosive, which tells him that he needs to continue to withhold and makes it worse...and the cycle continues.
His ENT appointment wasn't very successful either.  He threw up when they went to test his hearing and then did not participate in the test.  His ears are okay and the doctor wants to wait for Ethan's other issues to be addressed before thinking about making any changes to Ethan's care.  There is a surgery available for his drooling but it could cause dental issues - so we need to see what his adult teeth are going to do or if time will correct it.  He suggested we might want to do another swallow study, but knows that now is not the best time because we need to keep his lungs safe. 

Meanwhile besides the withholding, he is doing pretty well.  He is in respite for a couple days now and we are awaiting news from the orthopedic surgeon.  The second opinion has yet to be transcribed...and our doctor doesn't want to proceed until he gets this report.  So again, we wait!

My mom visited recently and took a couple pictures that I thought I would share.

If you look closely you can see Lorelei's right eye infection.  But you can definitely see the maternal resemblance.  :)

And here is some of that maternal attitude.  :)  Okay so Ethan's not showing attitude, just some innocent finger chewing.