More Appointments

Since Ethan came out of hospital he has been keeping me quite busy with appointments this month!  We had an appointment with Genetics.  She took his history from when she last saw him (at a couple months old) until now.  She feels very confident that he does not have the syndrome I was questioning but is on the search to see if he does have a syndrome we can identify.  It may just be he has his own (Cutest Boy In The World - I'm telling you!), but given he has multiple things going on that typically means there is a syndrome of sorts.  She sent us home with a requisition for blood work and will let us know if anything turns up.  If there is a question that it could be genetic, Clayton & I may be asked to have our blood checked as well.  But there is a high likelihood it will come back inconclusive.  She took more pictures of Ethan's tumour sites and his long fingers.  She discussed his skin and anything else she thought of during the appointment.  In her file on Ethan she had photos of him when he was younger, it was really cute to see him in those photos and that was what really prompted me to get his hair cut.  I've been talking about since late last year and am really happy we finally had it cut!  It is so nice to see his ears without hair hanging into them.  :)

His new brace came in the day he was admitted so we had to wait a bit to have him fitted, and then it took me even longer to get a picture of him in it.  But here you go, the new lighter brace (than the cast anyway) and hopefully the salvation for his back for a while to come.

He was swatting me out of the way, I was blocking the TV, but you can see how it fits around him in a very masculine fashion.  ;)  As you may notice as well, we're continuing to put his casting shirts to use. 

We had another saliva study done that shows he refluxes a lot (but it didn't seem to go all the way up to the lungs), and we did not notice anything in his lungs.  The results of this study will be provided to us in September when we see his Respirologist again.

He had his eyes checked again and shows a wee bit of improvement in sight but did not cooperate with the images for the whole appointment.  She figures it was more a case of him being done participating than a vision issue.  She had played Dora at the start and I suggested next time we wait until the end of the appointment to test his distance vision with Dora as he likely wanted to continue to watch TV instead of look at the images on the cards she had for him. 

We tried to fit him with a bath seat, but the options provided to us just didn't work well for Ethan/our bath.  We see the OT again next week and hopefully she'll have a more suitable option then.  We still have several more appointments to round out this month.