Monday, March 14, 2016

Mystery

It sure is a mystery what is going on with Ethan the past few weeks. He has been having bouts of constipation and vomiting...likely related, but who really knows. Then on Tuesday he started vomiting and within about 24 hours threw up 10 times, the last five were on Pedialyte and a reduced feed rate. Off to the clinic to see if it is anything obvious (besides a potential G.I. bug - without the diarrhea that typically comes with such a bug). Doctor's suggestion, slow his Pedialyte down even more and try to gradually build him back up to volume and calories. Skeptical, but it seems to work. Yeah!! Good for Thursday and a little vomit with a med on Friday, could be a one off...perhaps flushed too fast, too heavy on an empty tummy - this is how this med is intended to be given - who knows?! It is the only one so no big issues, just a head scratcher. Saturday was a good one and then came Sunday morning...

We'd finally started to get some calories into him and were close to his usual feed volumes, mostly with Pedialyte. He was doing well with this on Saturday and first thing in the morning...but after he woke up, the flood gates opened again and within two or three hours, he'd thrown up four times. Back to the clinic and the doctor again suggests that all vitals are good and it could just be a relapse, try going back to clear fluids and working towards calories again. So that is what we're doing. Ethan is still quite behind on his fluids, obviously his output is reduced in both the one and two departments and we just switched his feeds from continuous to four hours with two hours off. Good thing he had a reserve of weight as it looks like he's lost weight. His little tummy is gone again. Hopefully it was just a minor relapse and he continues to improve. He was obviously feeling miserable on Sunday. :( It is so hard to see your child feel like that and not be able to do anything to help!

Although his tummy is smaller, at least he isn't as thin as he was this time last year!

He is scheduled for therapy this week, but will have to start it a day or two late to be sure he is on the mend. Add to that, we didn't have night nursing last night so I was up until 3:45 am and then got up with him again at 8:15. Thankfully, I was able to get a night nurse for tonight. Whew!

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