Increased Requirements

Okay, so Ethan has gone from 3 litres of oxygen by nasal prongs and blow by air in the ER on Sunday down to 2 litres of oxygen and humidity during rest periods.  Then Monday night they had to increase his oxygen to 3 litres and reintroduced the blow-by with humidity this time.  Last night they increased his oxygen to 3.5 litres and a whole lot of blow-by with humidity.  Today we're up to 4 litres of oxygen with the blow-by.  They are looking at different ways to get the oxygen in him and this is a mask they had on him for a bit but he didn't tolerate it very well.  Especially when he turned onto his back.

To visit my boy this is what visitors, doctors, residents, nurses and pretty much everyone has to put on the following to enter our room.

Ethan has been causing a bit of a concern today to the point that they have advised the Paediatric Critical Care Unit that he may end up under their care.  I have been asked what measures we would like them to take (just so they know)  and warned they may try to intubate him or if all else fails trach him if he continues to go downhill.  They did another x-ray this morning and his lungs look even worst than they did yesterday.  They also did an ultrasound of his lungs and have found fluid in them.  We're waiting to hear if it is small enough for him to deal with or if more invasive interventions are required.  Meanwhile he has been very lethargic today as well.  He was pretty much asleep since 9 PM yesterday and has only had brief waking periods.  He only wakes long enough to yell at anyone touching him.  Mind you most people are either trying to get blood from him, giving him his puffers, giving him chest physio or moving him.  He is still pretty feisty though.  When he had his x-ray done, it took 3 people to hold him and one to take the x-ray...but at one point he was so mad he stood up from sitting.  If you overlook the fact that he is pretty sick, it was kind of neat to see him weight bear like that.