That's how long we managed to stay out of hospital!
Ethan returned to therapy on Monday morning and I picked him up on Tuesday at 17:00 as previously planned. When I picked him up I saw a really lethargic, unwell little boy! He was so not himself. They had told me he'd been sick twice that day (during transfers - when moved from one position to another) but was in good spirits otherwise especially in the morning. He'd slept well the night before and had had a nap. For someone who was that well rested, he sure didn't look it! I dialed up Clayton on the cell phone when I got into the car and had him call the after hours clinic because I thought he needed to be seen. I didn't even get out of their driveway before Ethan had gotten sick twice. I picked up Clayton and Lorelei (and Ethan's suction machine and a couple other supplies) on our way to the after hours clinic and Ethan was sick again a couple times. At the clinic he was sick twice. When the doctor came in she said, "And why aren't you at Emerge?" And promptly sent us there. On the way, Ethan was sick again a couple times and in the ER he was sick one more time. Besides the ones in the car it has mainly been when he was transferred (IE: wheelchair to car seat). He was admitted last night and we've been running tests to see what is wrong. We're pretty certain it is not a respiratory illness (they did give him a dose of antibiotics in the ER but we have pushed not to have another set started until it is certain that he has a respiratory illness). He has not been behaving as though that may be his problem. His oxygen saturations are okay (a bit of dipping but not much), he is not working hard to breathe and does not have nasal flaring.
His chest x-ray never looks good, so there is no change there and he has not been sick again since last night...but not for lack of trying. He has been lurching a fair bit but since he doesn't have anything in his tummy he has not been able to get sick. He is only getting an IV right now and specific meds (that he gags on even though they go into his tummy). He has had a shunt series (x-rays of the shunt track) done and they show no concerns. We are awaiting an MRI of his head to see if there is anything going on there. He has had some loose stool, but they've been odd lately, and only started after the antibiotic/IV fluids last night. No one knows what it might be, either a gastro bug or something with his brain. Hopefully we'll find the answer soon. His MRI is tonight at 21:00, and we should know the results tomorrow morning...
He has had moments of more energy today, but still far from being his usually wiggly, smiley self!
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