Farting Dinosaurs! This video was taken about a week ago now, but Ethan has having a great time playing with the touch screen computer in his hospital room. I think the delay in the screen responding to his touch is due to the fact that his hands are all drooled up. ;)
Ethan's sleep schedule has been really out of whack lately. He is napping late and long and then it takes him a long time to go to sleep at night. During his sleeping periods he is desaturating (oxygenation goes down really low) and needs oxygen or to be woke up and encouraged to cough to clear his secretions. He is very cranky when awoken from his nap (or sleep in general I should say) and I took these pictures in hopes of waking him gently.
They are always so sweet when they sleep! :)
These photos were taken on May 26, and I'm sorry to say we're still in hospital! Ethan was off oxygen for a bit during the day last week, then fell asleep and needed oxygen. From then it progressed to needing oxygen around the clock again. His nightly (and nap time) requirements are quite high at 2 litres of oxygen. The past couple days they have been able to turn off his oxygen during the day but as soon as he falls asleep his oxygenation dips to 78 percent and they have to give him the 2 litres of oxygen. You can tell when he is having some issues. He works harder to breathe, his veins pop out more and he seems really uncomfortable. We hope that he is able to come home sometime next week. It'd be really nice if they could either do his MRI or recast him before he is discharged but we are still waiting for word on either.
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